Schwannomatosis is a rare form of neurofibromatosis. The symptoms associated with schwannomatosis generally develop between the ages of 25 and 30 though there have been some cases where they manifested earlier or later. If the patient also bilateral tumors then they may actually be dealing with NF2 rather than schwannomatosis. The symptoms that one will experience when they’re suffering from schwannomatosis can vary based on where the schwannomas develop on their bodies.
Those who have schwannomatosis will often suffer from chronic pain due to the pressure being put on the nerves by their schwannomas. There have been various alternative treatments with anecdotal reports of relieving chronic pain. Cannabidiol is one that patients with schwannomatosis have praised, though its effect on the condition is yet to be confirmed by empirical studies. That being said, it’s still worth a shot if you’re trying to relieve the pain as it’s generally considered safe by most doctors.